Because Knowing is Half the Battle

This afternoon, my wife and I went to our teaching session for Ipiliumumab down at Rhode Island Hospital.

Oh, yeah, we decided we would move ahead with the Ipiliumumab right now and keep the spot radiation on hold for now. Given that I’ve “only got a little cancer,” there’s no point in killing the cancer right now. After all, without a tumor, there’s no way to see if the medicine is working. And if the Ipiliumumab doesn’t work, we can always do the spot radiation.

So we went down to the hospital and met with one of the nurses and got even more information. We didn’t get one of our favorite nurses because she left early not feeling well. I’m very satisfied with the other nurses, but there are two who have been especially amazing. It makes me feel much better that one of the two will be administering my drugs. I also got a handy wallet card that I need to have with me at all times, should I have serious side effects.

So, basically, my timeline is four doses of Ipiliumumab over the course of ten weeks. I then do a whole bunch of PET scans to watch the tumors. They might get bigger, or smaller, or not change, or get bigger then smaller, or get smaller then bigger, or any other combination of bigger, smaller and no change. If I can tolerate the four doses, there’s a reasonable chance the drug will do something good for me.

As usual, there’s a catch. I could get a rash or have liver failure or nerve damage to the point of paralysis or colitis or massive glandular problems or eye problems. Or I could die. But it’s not all that likely. There’s nothing quite as exhilarating as reading medical documentation!

At some point I think I should have some sort of emotional response. I’m starting to get upset that I’m not upset. Hell, it’s more troublesome than the cancer. Maybe because I’ve been so good at only focusing on the next step and I can’t see the bigger picture. Maybe I do need to join a support group or talk to a counsellor after all.

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